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Munroe-Meyer Institute

- Services Overview
- Make an Appointment
  Most appointments for MMI's unique range of services for individuals with disabilities are scheduled through our Patient Information Office.
- Diagnosis and Disorders
  Learn about a specific diagnosis or developmental disorder.
- Community Engagement
  We bring together providers, agencies and stakeholders to improve the lives of individuals with disabilities and complex health care needs.
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  Helpful information about insurance, evaluations, interpretive services, lodging and more.
- Request an Interpreter
  We provide qualified language interpreters for our patients with limited English or sign language interpreters for our patients who are Deaf or hard of hearing.
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- Civil & Legal Resources
  All people have the right to be included in their community with access to public spaces, housing, education, and employment. Access to civil and legal resources makes this easier for people with disabilities.
- Legislation and Disability Policy
  MMI serves as an expert resource to state and federal policymakers on issues impacting individuals with disabilities and their families.
- Leadership & Advocacy Opportunities
  There are many opportunities for individuals with disabilities and family members to become involved in leadership roles.
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  We help families with children who have disabilities navigate resources available across childhood to early adulthood.
- Education Overview
- Departments & Programs
  Our clinical departments provide learning opportunities for students in professional training programs within UNMC, the state of Nebraska and across the country.
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  Learn about our leadership and advocacy training opportunities for parents and caregivers of individuals with neurodevelopmental disabilities.
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  Many of our programs and services offer job shadowing opportunities.
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  At MMI, you'll find professional development and continuing education opportunities, including leadership training, workshops and clinical experiences in genetics grand rounds.
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- Faculty Research
  We work in basic, applied, translational and evaluative research in every one of our programs and disciplines.
- Student Research
  Assisting MMI faculty in their research efforts are numerous post-doctoral fellows, doctoral interns, graduate and undergraduate students from across the nation.
- Active Research Studies
  Explore MMI research studies recruiting participants.

Preparing for Health Care Visits

This research study is for parents, caregivers, health care workers and individuals who support individuals living with autism, intellectual and developmental disabilities or related disabilities.

Eligibility Survey

If you are interested in participating in this study, complete our screening survey.

Screening Survey

Conditions to Participate

You or your child may be eligible for this study if you are 19 years of age or older and a:

Caregiver of individuals with autism, developmental, intellectual and related disabilities,
Health care provider who serves individuals with autism, developmental, intellectual and related disabilities, or
Other individual with a relationship to an individual with autism, developmental, intellectual and/or related disabilities (e.g., grandparent, staff).

More Details

The goal of this study is to gather evidence on current community needs related to individuals with autism, disabilities (developmental, intellectual and related disabilities) attending and participating in health care appointments. This information will be used to develop trainings for health care workers.

To collect this information, we are administering an online survey and conducting interviews. Caregivers and health care providers are invited to participate in one or both parts of the study.
The survey will be administered online and take approximately 15 minutes to complete.
Interviews will be scheduled at your convenience and take place in-person or using a web conferencing software like Zoom. Interviews will take approximately 60 minutes.
There is no compensation for participating in this study.

IRB# 895-23-EX

Establishing Needs Related to Individuals With Disabilities Preparing For and Attending Health Care Visits

Mary Halbur, PhD, BCBA-D

Mary E. Halbur, PhD, BCBA-D, LBA

Clinical Director, ACT Clinic North Omaha, Munroe-Meyer Institute iCASD
Assistant Professor, Munroe-Meyer Institute iCASD
Board Certified Behavior Analyst

Principal Investigator

Phone: 402-836-9908