Patients with long COVID and their caregivers shared how the illness has impacted their lives, the treatments they’ve tried, and their hopes for clinical trials during a virtual public meetingopens in a new tab or window on Patient-Focused Drug Development for Long COVID hosted by the FDA on Tuesday.
Impacts on Daily Living
Jill Anderson, a patient participant, works for a behavioral health community services board in Virginia. Before developing long COVID, she had never had vertigo. Today, she’s dizzy all the time.
“I would get up in the middle of the night and take a step out of bed and fall to the floor. It was terrifying how my world was spinning and out of balance,” she said.
She has also experienced significant “brain fog,” fatigue, and loss of appetite. Anderson currently works remotely on a reduced schedule and is worried she might lose her job.